Wednesday, July 25, 2007

Duty Calls...

I am going to the National MSTP conference in Keystone, CO until next Monday. So no blogging for a while. But training will continue, don't worry! I'm still going to rock the Urbanathlon (I think). Send me good vibes for a safe trip!

Tuesday, July 24, 2007

Holla! (Vol. 2)

To continue the "Holla!" part of my website (where I talk about people who make my life with Crohn's easier), I am going to profile the one-and-only love of my life, my wife.



My wife, as regular readers of this blog know either first-hand or have intimated from previous posts, is named Eileen. Eileen and I met in medical school at the University of Chicago and completed our first two years of medical education together. After second year, Eileen went on to the clinic and finished up in 2006, when she became a doctor (or Suga Mama, M.D., to me. See picture above). She is currently in her second year as a Pediatrics resident at the University of Chicago Comer Children's Hospital, where she does an outstanding job taking care of sick kids, and comes home every night with a request to adopt a new baby. Having a child will happen someday, probably sooner than I think, but I would like to finish most of my medical education and have at least one degree before I am responsible for someone else.


Eileen is Korean. There's really no point to me telling you this, except that I think it's cool that we are both children of immigrants. I never thought that when I grew up I would create a Swiss/Korean alliance, but I think it's awesome. My mom thinks it's awesome, too, because she thinks half-white, half-Asian babies are super cute (she has placed a request for a granddaughter from us). And most people thinks it's awesome because they think Eileen is awesome. To the right is a picture of us from our wedding.

Here are some of the things that make Eileen awesome to me:

1) She is a total babe. If she were a president, she'd be Baberaham Lincoln.
2) She's really smart. She's a doctor!
3) She likes a lot of the same things that I do: traveling, eating, cooking, running and watching movies, to a name a few.
4) She's really clean. She has a tendency to leave York Peppermint Patty wrappers on our couch, but other than that our place is super neat and orderly, and she keeps me in line so that I don't turn the place into a mess (Mom would be proud).



Oh, this is supposed to be a Crohn's related post? Almost forgot it's not just me telling the world why I love my wife. So yeah, it's totally sweet that I was lucky enough to marry someone with these qualities, but the list as a whole is admittedly a little superficial.

Do I love my wife for other, deeper reasons? You betcha.

1) Whenever I am sick, she takes care of me. I don't get sick very often, but Eileen is always there to comfort me, to think of ways to make me better and to pick up the slack when I am too tired to do anything.
2) She doesn't make me feel bad about my Crohn's. I know this is kinda like, duh, because what kind of a spouse makes their significant other feel bad about having a chronic disease? But I have some unfortunate consequences of my Crohn's, including bad gas from time to time, and Eileen never makes me feel bad about it. My family has experienced this unfortunate side effect when we are home to visit, and their response is "Whoa! Eileen is a saint for putting up with that!" And she is. Amen.
3) She encourages me to be active and live a normal life.
4) She participates in my GIRF things...she was my training partner for the marathon, comes to our Associate's Board party and Dr. Rubin's patient education seminars, and encourages me to support a wonderful organization.
5) Most importantly: No matter what, she always makes me feel loved.

OK, we're heading into personal, cheesy territory, so I'm going to cut this post short. But I'm still going to leave a parting message (either heart-warming or gross, depending on your level of cynicism and tolerance for public displays of affection):

Eileen, marrying you was the best thing that ever happened to me. You are the love of my life and the reason I can approach each day with optimism and contentment. Thank you for always standing by my side. I love you.

Holla!

Sunday, July 22, 2007

Training: July 22, 2007

Today I ran 10 miles. I was excited because I have now broken into the double digits in terms of mileage, and I also felt really good the entire run. I think it took me about 1 hour 20 minutes (I don't know for sure because I don't run with a watch--it makes me hysterical and the run a little less fun, although I will probably start using one every now and then, just to push myself), so holding 8 minute miles for a training run is good, for me anyway.

Toward the end of my run, however, I was put in a dark mood. At mile 8 all of a sudden I hear this "whoa, whoa" behind me. My subconscious brain said to me "There is a biker behind you and he is about to run you over"...so I took a quick step to the right and narrowly avoided being bike roadkill. It was a little less dramatic than it sounds, but I was annoyed because 1) I almost suffered bodily harm and 2) why can't people realize that they aren't the only ones on the path? This gentleman (I'll be kind) was biking and jabbering his mouth off to the buddy with whom he was riding and neglected to pay attention to a small detail--the path in front of him. And more specifically, me running on the path in front of him. I'd say he at least had the presence of mind to make some noise so I knew he was behind me, but clearly he was just freaked out and that was what I heard. Hey, if I'm in your way, I'm all for stepping aside--bikes are faster than legs and it's easier to take a step to the side than to navigate a bike around someone. But warning would be nice.

To expunge my dark mood (actually, I felt better once I got home and went to church, but I'm sort of getting myself worked up again thinking about it), I'm going to list some Lakefront Path etiquette that would be nice for people to mind:

1) Watch where you're going. The world doesn't actually revolve around you, so don't expect that everyone will magically move out of your way (FYI: I need to remind myself of this more than I care to admit, too).
2) Stay on the right side of the path. The reason elementary schools tell kids to walk on the right side of the hall is so that they get used to being on the right side (for driving, for instance) for the rest of their lives.
3) If you need to cross the path (for instance, to get from a parking lot to the beach), look both ways before stepping onto it! The path is probably more dangerous than most major roads.
3b) This goes double for your kids. Please watch them, keep them in line, and remind them that the path is not a place for them to play.
4) If you are going to go for a run, please leave your Starbucks coffee at home. You wouldn't believe how many people I see doing this. Drinking a diuretic while you are running--ok, these people are mostly just walking kinda on the faster side, but they have better running gear on than I do--is not a good idea. Though caffeine may reduce muscle soreness after strenuous exercise . But the key word is AFTER (and "may." The study is probably too small to be meaningful).
5) If someone waves at you, or says good morning, be polite and at least nod your head in acknowledgement. The world's not all bad, is it?

Oh, my righteous indignation! Hey, the world's not perfect and I realize that everyone has their days. And I can do better with #1-5 myself. But if everyone just put forth a little more effort...ya know?

OK. I feel way better now.

Friday, July 20, 2007

Coming out of the Bathroom

One of the choices that everyone with IBD must make is how and when (if at all) to tell people of their condition. This can be a decision that makes IBD sufferers feel frustrated, ashamed, confused and in the end, hopefully relieved. But everyone has to decide for themselves how they want to "come out of the bathroom" to family, friends, co-workers, and love interests (aka future husbands and wives).

I decided for myself that I would just tell people straight up what was going on with me and my Crohn's. I'd like to say that it's only because I am super secure with myself and that I really just don't care what people think--if my IBD is too much of a problem, then I won't waste my time with them. But I think that mostly I am quick to disclose my condition because I can't be bothered coming up with excuses or having to deal with questions/whispers/etc. about why I have to go to the bathroom a lot or why I might suddenly lose a noticeable amount of weight.

Before I go on, I just want to make one thing clear: I'm a pretty open person in general, but it's not like when I meet someone I introduce myself and then say "Hey! I have Crohn's Disease, too!" I'm not a complete nutjob. What I'm referring to is informing people that I will (hopefully) have a longterm relationship with what the deal is upfront, so that we're all on the same page--whether it be a girlfriend, co-workers, etc. This has worked out pretty well for me. For instance, one of the biggest problems that I have with my Crohn's is that I have a lot of gas (or flatus, in medicalese). I know it's not the most polite thing to talk about, but imagine if you have to work around it! On certain days (it isn't that common) the people that I work with in lab should really be canonized for sainthood...but they know why I have the problems that I do and they deal with it and don't make me feel bad about it, loving me anyway (as well as plugging their noses. Again, sorry if I'm getting a little vivid).

In general, though, I think that people need to be more upfront about the condition that they have, instead of hiding it. This relieves them of their shame, and also helps educate others. As I alluded in an earlier post, the incidence of Crohn's and other forms of IBD is rising worldwide, and people need to be aware of it--in terms of making restrooms more available to IBD sufferers, being more compassionate when someone gets ill or needs to interrupt a meeting/get-together for an (all too frequent) bathroom break, etc. I think part of the problem is that our society has a big time hangup with anything remotely related to eating and processing food, so we don't like to talk about it. But that's exactly what we need to do.

Telling Eileen I had Crohn's was relatively easy because I think she knew it before we even started dating (I'll ask to make sure). I actually told my medschool class about my CD very early on, because it came out in a Clinical Skills class we had. We had to interview a "standardized patient", basically an actor who plays the part of someone with a disease. Well, this actor was supposed to have Crohn's Disease, and in my effort to NURS (Name, Understand, Respect, Support) this standardized patient, I mentioned that I had the disease too and so I could empathize with their difficulties. I wasn't sure I was supposed to do that (obviously it's all about the patient, not the doctor), but I went ahead and did it because I thought it would be a good discussion point for the class (we watched videos of our interviews together). Basically our class decided that it was okay to drop information like that as a physician if you are 1) comfortable doing so and 2) not making it all about your problems. Obviously it is helpful in engendering some doctor/patient trust. But, like all powerful tools, it must be used judiciously. Anyhow, this is a long way of saying that Eileen basically already knew that I had Crohn's and didn't care, which is good. I think in a way it has ended up making her love me more (if it's even possible!), because she will always have a very special way of taking care of me that nobody else can. :)

So, if you have IBD and are comfortable with it, tell the people who surround you every day about your condition. The more we talk about it, the less we have to be ashamed or worried about damaging consequences. If nothing else, it will make you feel better not to carry the burden of your disease alone. And I imagine you'll find (like I did) that if anything, most people want to go out of their way to help you.

On an only moderate tangent: I was reading Newsweek and found an interesting article about dating websites for people who have a medical condition and are worried about the "big reveal" concerning their problem. If you have CD or any other disease, have anxiety about telling potential girlfriends/boyfriends, but are still looking for love (and darn it, you should be), these might be places to start! Note, however, that I have no experience with either. I found my honey in medical school.

For people with Crohn's and Irritable Bowel Syndrome: http://www.irritatedbeingsingle.com
(Totally dig the punny name)

For people with medical conditions in general:
www.Prescription4Love.com
(I don't know about the name of this site; it sounds like a bad reality TV show. But hey, it's the intent, not the name, that counts)

Wednesday, July 18, 2007

Memories (Vol.1)



This is the part of my blog where I discuss a memory that is somehow Crohn's related (I have a bunch of good ones planned, so don't worry...these aren't going to be installations detailing the minutiae of my last trip to the gastroenterologist).

Today I'm going to start with a very happy memory: running the 2005 Chicago Marathon.

This "doing a sporting event to raise money for GIRF" thing is not new to me. In October 2005, Eileen and I ran the Chicago Marathon, and in the process I raised over $2000 for GIRF via donations from family and friends. An extra special thank you again needs to go to everyone who donated, but especially to my parents and their extensive network of friends (who, in essence, have served as my adoptive aunts and uncles since my extended family lives in Switzerland). You were all so generous, and I am still thankful for the support you gave me leading up to and on the day of the Marathon (and since)!

So, the Marathon was a really incredible experience. It was 26.2 miles through most Chicago neighborhoods, and it was such a great way to see the city. The coolest thing about the race was that you really got to see the different characters of Chicago neighborhoods. Running by the skyscrapers downtown, listening to techno music and seeing men in drag in Boystown, getting distracted by the traditional Mexican dancers in their bright-colored dresses in Pilsen, being offered sliced oranges from small kids in Chinatown--it was as though the city put all its (best) faces forward that day to support the runners and (especially at the end) help you fight through the pain (The picture above is taken at around mile 13, right smack in the middle of the Loop. That's Eileen in the lower right-hand corner).

The race itself went relatively well. Eileen and I had run up to 22 miles during our training, and we had been told (as marathon virgins) that our adrenaline would push us through the final 4.2 miles on race day. This basically held true for Eileen, but was an outright lie for me. At approximately mile 22, I thought that I was going to collapse. I stopped at every Gatorade station, held back my wife from finishing strong (I needed someone to throw me over their back and carry me in case I fell over) and just had a general sense of malaise for the last 45 minutes or so of the race. It's actually quite funny when you look at my times because we were holding about 7 min 30 second miles for the first 16 miles, and then they started creeping up to 8/8:30...and from 22 on it was all over 10 minutes/mile. In the end, I didn't care, because I crossed the finish line and did what I set out to do. And in case anyone was wondering, we finished the marathon in 3 hrs 49 minutes (Eileen beat me by a few seconds--which separated us by like 40 people in the standings(!)), but Eileen would have been even faster if I hadn't been the ol' ball and chain. Hey, that's the way love goes, folks!

When we finished, Eileen thought I didn't look so good--apparently I was even whiter than I normally am, with a nice tint of green to my complexion. But lots of food and water later, I felt better. However, I was left with one thing to ponder: what is up with the people who run 26.2 miles and then can head straight to the Miller truck to down free beers? That is some hardcore training, people.

The next week was pretty painful on the joints; my marathon-seasoned friend Holly told me that it would be much easier on my knees if I would walk backwards down the stairs, and boy was she ever right (keep this tidbit of info handy should you ever run a marathon)! Other than that, though, long-term pain was pretty minor.

Here are the lessons I learned from the marathon:

1) You can do anything if you decide you are going to. I had never run any sort of race before (I am, and always will be, a water baby), but I figured I might as well start with a marathon. It required a lot of training, a lot of early mornings, and a lot of convincing myself to get out of bed--but it was worth it. If you have a goal--to learn a language or to play an instrument, to run a marathon or fly a plane--go for it! You'll be glad you did.
2) Doing things with someone you love is a lot more fun. I never would have finished if I didn't have Eileen as a training and race partner.
3) Men need to put band-aids or athletic tape or some other similar substance over their nipples if they run long distances. Otherwise, they will bleed and be subject to infection (this happened to me).
4) Chicago is an even cooler city than I thought.
5) The world is full of extremely generous people (see the first part of this post).

When I think about my Marathon experience, it makes me even more excited for the Urbanathlon. I'm looking forward to another unforgettable day.

Monday, July 16, 2007

What Is Crohn's? (Part 2)

One of the most difficult things about dealing with Crohn's is that noone knows what causes it. If pressed, people give a hand-wavy answer, saying that it is the result of environmental influences inducing autoimmunity in someone with a genetic predisposition. In fact, a few genes have been identified that appear to be linked to developing Crohn's (they are mostly genes involved in intracellular signaling that senses bacteria). Actually, one of the first was discovered right here by one of our researchers in the U of C GI Section. Holla!

Beyond this, environmental factors definitely play a role: the incidence of Crohn's is on the rise throughout the world, and it is increasing primarily in industrialized countries, specifically in urban centers. Interestingly, Crohn's has also been linked to the advent of refrigeration--crazy, huh? So basically we might be too hygienic for our own good (Note: it's okay to worry about your kids and germs, but it's okay for them to go outside and play and eat dirt from time to time, too--advice from an Immunologist, not a doctor).

Anyhow, while I won't argue that genetics and the environment are both playing a role in Crohn's, that information alone doesn't help us much. For instance, when you get pink eye, you can basically narrow down the causes why (i.e. bacteria) and treat them (i.e antibiotic eye drops). When you get Crohn's, since we don't know exactly what the cause is, all we can really do is treat the symptoms (with anti-inflammatories, immunosuppressants, surgery). Obviously this is good, but not perfect for the long run ('cuz, ya know, you need your immune system for doing other good things)...and that's why I really want us to be able to figure out the cause of Crohn's (even if it's exceedingly complicated, which it probably is), and then work on the cure.

An interesting side note about Crohn's incidence is that it appears to be less prevalent in Asian populations (though incidence in Asia is also on the rise). Is it the importation of western culture in Asia (i.e. the fast food nation effect)? The rise of ultra-clean societies (Hello, Singapore!)? I don't know. Discuss! Anyhow, the reason I bring this up is because I'm hoping that, at least genetically, Asians are less susceptible to Crohn's Disease (and anyone with information on this, I would appreciate if you could fill me in). If so, when Eileen and I eventually have children, hopefully her good genes will overpower my own and our kids will be healthy and disease-free (yes, I also plan on letting them eat dirt--although incidentally, I played outside in a lake almost every day growing up, so that can't be the whole story for me).

Can you tell that I have been thinking about this extensively? I guess that when faced with the downsides of a chronic disease, I have found two things have helped me quite a bit: planning and controlling the things that I actually have control over (incidentally, I didn't marry Eileen because I thought she had superior, Crohn's-free genes; it was just a perk), and having a sense of humor about it all.

And in case you were wondering, my pink eye is gone.

Friday, July 13, 2007

Come Party With Us!



October 20 will be a very exciting day. In addition to my Urbanathlon in the morning, our GIRF Associate's Board is having their annual fundraiser that Saturday night. This year we will be "Swinging Into Action with GIRF" at Harry Caray's Restaurant in downtown Chicago, and as always it should be an outstanding time--all you can eat, drink, and some of the coolest people in Chicago (including, but not limited to, Howard Grill and Scott Attar). Plus, we will have our perennial "fabulous silent auction" and raffle. Won't you consider joining us? Details in flyer above.

Note: If it seems like I'm coming on too strong with all this fundraising business, please consider this just a way of giving you options: support my Urbanathlon, come to the party and support GIRF that way, buy raffle tickets (you don' have to be at our party to win; we'll send you your prize)--I am thankful for any support you can give GIRF, and any means by which you want to express it!

THANK YOU!

Thursday, July 12, 2007

Training: July 12, 2007

There's getting to be a lot of posts on my blog, so I just want to remind everyone of what I am doing here.

Yesterday I did a 2-a-day. In the morning I went to the gym, and because my legs are still really sore I did all upper body stuff. This is good for me to help me overcome my issues, but it also reminded me that I am not particularly strong in the bench press. That's okay; I don't think the Urbanathlon requires me to lay on my back and push things up off my chest at any point during the race.

The morning was fine, and that was supposed to be it for the day, but then I remembered that I had to go and take care of Brooke and Kent (friends of mine)'s cat, Annabelle. They live about 25 minutes away by bike and it was a really nice night so I decided to bike up there instead of drive** (plus, it was a greener decision). So suddenly I had my second workout of the day, which I thought would be okay from time to time because that way it gets me used to exerting myself even when I might be a little bit tired (say, at mile 12 of a 13.1 mile race). Anyhow, it was kinda late when I got started and I didn't want to wear sunglasses while biking because biking in the dark with sunglasses on is probably not the smartest idea. It was also not the smartest idea to bike without something covering my eyes, however, because there are swarms of gnats all along the Lakeshore Drive bike path. It's kinda nasty. But even nastier is that some of these little buggers got in my eyes as I was biking. Yeah, gross. But even nastier than that is that this morning I woke up with (I think) pink eye (and crusties in my eyes)! So I think I got pink eye from Lakeshore gnats (question to any doctors reading this: is that even possible, or am I just having an anti-bug reaction in my eye?). So that was kinda a bummer. But I have eyedrops, so it's not getting me too down.

The moral of the story is: don't do your second workout (if you are even going to do one) too late at night. You get bugs in your eyes.

Plus, it's hard to fall asleep after exerting yourself.

**I actually had another, secret reason for wanting to bike. I think that bikers and sprinters have really cool calves, and I would like for mine to be bigger. I know, it's kinda weird but apparently I am not the only person who has this obsession. So that is a side goal of the Urbanathlon, in addition to raising money for GIRF--to have strong legs, and specifically, larger calves, by October 20. Two people I know who have really nice calves are Eileen (hey, don't begrudge a guy for marrying a woman with a nice set of legs) and my awesome friend Melanie, who has an insightful and amusing blog about being an expat in Singapore. Won't you keep her company, too?

Wednesday, July 11, 2007

Holla! (Vol. 1)


This is the part of my blog where I give big shout-outs to people who help me manage my disease.

I'm going to start with my doctor, David Rubin.

I first met Dr. Rubin when I came to U of C oh so many years ago and the student care center randomly assigned me a GI specialist to go and visit. All the GI docs at U of C are great, but I still think I got super lucky when I got Dr. Rubin. From the beginning he has always provided me with excellent medical care, but seemed genuinely interested in me as a person, too. Maybe he's just really good at faking it, but it's always nice not to feel rushed out of the doctor's office.

Anyhow, Dr. Rubin has done many wonderful things for me, and I will just give you the highlights, because it would take up way too much space otherwise.

1) Anytime I start feeling a little flare-y or need a refill on my prescription, I can get a new script from Dr. Rubin very quickly (this point doubles as a shout out to Linda, his awesome nurse. You rule, Linda!).
2) One time I had a really nasty bacterial overgrowth in my GI tract and because I'm a guy I thought it would just go away. It didn't and the pain got borderline unbearable (I'm being a little dramatic here), so I called up the GI offices and Dr. Rubin saw me half an hour later. One course of Metronidazole and a couple days later I was good as new. Whew!
3) He got me started with GIRF, so they can thank (or perhaps more appropriately, blame) him for having me around. But I got a good deal out of that one.
4) He always does awesome patient outreach/education stuff where we can learn more about IBD. Learning + food + drinks = fun with a purpose!
5) I haven't flared in a while.
6) OK, this one is maybe a little fluff, but Eileen had secretly been coveting this Dean and Deluca spice rack for years, and he got it for us for our wedding. You could chalk this up to random coincidence, but it just goes to show you how well he knows his patients--he even knows what their spouses like!
6a) I actually have to amend the last point. I really think that the present was the result of Dr. Rubin's incredibly wonderful and beautiful and funny wife, Becky. But we know Becky because of David, so he still kinda gets props for the whole thing.
7) David was on Good Morning America talking about Ulcerative Colitis (another form of IBD). I tried finding a video on YouTube, but apparently it isn't available. Darn.

Whoa! Did you see me change from calling him Dr. Rubin to David? This has been a difficult transition for me. When I first met David, I was in my early 20s and my parents always raised me to never call people older than me by their first name. I called him Dr. Rubin for a long time. Now I'm almost 30, and I consider David to be a friend in addition to being my physician (plus I'm in grad school where we call everyone by their first name), so calling him Dr. Rubin feels a little weird. But I'm not really comfortable with David--something vestigial from my upbringing, I guess. I have solved the problem by just not calling him anything when we see each other (eye contact is very effective in letting someone know you are talking to them), and addressing emails to DTR (his initials)...that seems kinda cool, right? But I'm getting better because now I refer to him in the 3rd person as David. I think part of my hang-up might be that I am going to go back to medschool and I will have to call him Dr. Rubin again, anyway. So I might as well not get too comfortable.

Anyhow, David, Dr. Rubin, my #1 doctor--thank you for keeping me healthy! Holla!

Tuesday, July 10, 2007

What is Crohn's?

Crohn's Disease is a form of inflammatory bowel disease that can affect the entire digestive tract. It is an autoimmune disease where your blood cells are basically attacking your gut (or in my specific case, the terminal ileum--the end of my small intestine--and some spots here and there in my colon). So I guess that is the great irony of my life--I got accepted to graduate school for Immunology and a year later came down with an autoimmune disease. Hooray! Anyhow, if it seems like I am being flip or bitter, let me disabuse you of that notion...living with a chronic disease is no picnic, but everyone has their special challenges in life and I am happy that I have people helping me keep my disease under control. Yay Dr. Rubin and the U of C Gastroenterology Department! You guys are the best.

In any case, living with Crohn's can be a challenge, but as I have already alluded, when you have the best people taking care of you, it makes it easier. Fortunately my own experience with Crohn's has been a manageable one, as my condition has remained pretty mild. I was first diagnosed with Crohn's in 2001 and it came as quite a shock. I had no symptoms or any idea something was wrong; I just went to the bathroom and (I'm apologizing in advance here; trying to be as minimally graphic as possible) there was a lot of blood on the toilet paper. This, as a young man, was quite disturbing to me and so I freaked out, asked my mom what I should do, and she called our family friend Dr. Jim, a gastroenterologist near my childhood home outside Detroit. He saw me right away (thanks Dr. Jim!), a couple days later I had my first colonoscopy and then I was diagnosed with Crohn's disease.

Since that day, I have been on Asacol, an anti-inflammatory medicine for my gut, and every now and then I have to take some antibiotics because the bacteria in your digestive tract can get carried away sometimes when you have Crohn's. Occasionally I have some abdominal pain, but for the most part my condition has been well controlled. Crohn's flares have been anecdotally linked to stress, however, and I had a big flare around the time I took my first USMLE (doctor licensing) exam. I got pretty sick and had frequent fevers and lost a lot of weight. Fortunately, I still did really well on the exam so I hopefully remain an attractive candidate for residency programs. However, a lot of people have complications from their Crohn's Disease that are much worse than mine. Things like perforated bowels, fistulas (when one organ in your body makes an unnatural and unhealthy connection to another, or to the skin surface) and much worse pain can be common in many Crohn's patients, and often surgery is required to remove the damaged area of the intestine. This is not meant to be a downer, but it illustrates what I am trying to do here: not everyone has it as easy as I do with their Crohn's, and I want to help them out, too.

But it's not all gloom and doom. Here are some positive things to come out of my having an autoimmune disease:

1) I had a colonscopy before both of my parents. This was very helpful when I was trying to convince them to get a colonoscopy as a preventative screening measure for colon cancer (recommended for all people of a certain age...though I swear my parents are both well under 40. Really). I knew that it wasn't too bad, and important for their health. They both got it done--good job parents!
2) I have gotten to meet a lot of cool people. You know how when you are diagnosed with a chronic disease and then you find out that everyone either has that disease or knows someone with that disease? Oh wait, you probably don't. But nevertheless, it is true. I have met some truly amazing people through GIRF who are facing the same challenges that I am, and they are doing incredible things with their lives: scientists, architects, businessmen, lawyers, playing guitar for Pearl Jam (OK, so I didn't meet Mike McCready, but I still think it's awesome). It's really inspiring and I feel very fortunate to know these people, all because I was suddenly diagnosed with an autoimmune disease. I'll bet you know someone cool with IBD, too.
3) One day I can practice truthful empathy with my patients. Nothing makes you feel for a person with a difficult medical condition like being there yourself.
4) I've gotten a lot better about taking care of myself and eating well, not drinking too much, etc. Here's a pearl of wisdom for you: smoking makes Crohn's disease worse, so if you have CD and smoke, QUIT IT.

See? Having Crohn's Disease could be a whole lot worse.

Monday, July 9, 2007

Training: July 9, 2007

I think I mentioned that the Urbanathlon is meant to test more than just my running endurance...I actually have to be able to throw my weight around in interesting (and currently, unknown) ways. They had the first Urbanathlon last year in New York City, and from what I can gather on the website, there was a lot of climbing through contraptions and stair running. However, the thing that terrifies me is the rope climb and peg board. Because I was unathletic as a kid and pre-teen, I have a mortal fear of all things that test your upper body strength...my history with such activities is traumatizing, at best. But it's been a long time since 7th grade and the last time I attempted a rope climb, so I'm hoping for better results should I be faced with such a challenge on October 20 (hopefully years of swimming in the interim will help).

Anyhow, to protect myself from humiliation as much as possible, I have been hitting the gym extra hard to boost my strength. So far I have been using a training program from Men's Health magazine (but not the one they have on the Urbanathlon website--I'm saving that for when the date is closer). Basically today I had to do quite a few sets of barbell shoulder presses and deadlifts. I can't say that I have extensive powerlifting experience in my past, so the deadlifts were a bit of a challenge. Especially since I did 10 sets. It is now about 12 hours since I finished my workout and my back is already quite sore (though, incidentally, the lactic acid pain in my abdominal area is still preferential to the pain associated with a Crohn's flare, so I should really stop complaining). I guess I should have thought of the history of bad backs and hernias that run in my family (thanks, Paps!). But the other thing my folks gave me along with their genes was stubborn determination (thanks again!...this time note the absence of sarcasm). It's just another hurdle to prepare me for a successful Urbanathlon.

And to all concerned for my well-being...I promise I won't push myself to the point of breaking something. :)

Friday, July 6, 2007

Training: July 6, 2007

Today I went for an 8 mile run. It's a little bit far, but also only 2/3 of the distance I'll be running come race day, so....um, still a long way to go. The thing is, my legs really hurt because Eileen tricked me into running a 10K on the 4th of July. I say tricked not because I didn't know I was running it, but rather because I didn't realize the course was all hills. I know, I know...Chicago is pretty flat. I, too, lulled myself into complacency regarding this fact. But the suburbs can get pretty hilly, especially if you are running up and down them for over 6 miles (funny, in a car they don't seem nearly as bad). Anyhow, I finished and did reasonably well (43 minutes and some seconds), but I thought I might have a heart attack by the time I was done (again, returning to the theme of a LOOOOONG way to go). And two days later my body still hurt. But I pushed through the pain! So now I'm going to take a day off. 'Cuz, ya know, the race is still over three months away, and I want to keep myself fresh.

Won't You Help Me?

Do you think what I'm doing is cool and want to lend a hand? Or perhaps you have a friend or loved one (besides me) that has IBD or another GI disease and in their honor would like to support a group of people who are working towards cures? If you are inspired by someone (or if you have other reasons...hey, I'm not askin'), please consider making a donation to GIRF on their behalf. Any amount is welcome and greatly appreciated--every little bit helps! I know that through research in basic and clinically applied science, we will find lasting cures for a variety of digestive disorders (work that I might contribute to myself, once I finally finish school--only 50 more years to go!). So much work has already been accomplished, and this is a way to keep making progress.

If you would like to support my Urbanathlon efforts and help GIRF in the process, please make a pledge and send it to GIRF at the following address:

GIRF Associates Board
70 East Lake St.
Suite 1015
Chicago, IL 60601

All checks should be made payable to GIRF Associates Board (the Gastro-Intestinal Research Foundation is an Illinois registered non-profit organization ----- Federal Tax ID Number: 36-6108156).

(P.S. If you can include my name in the memo line, I'd appreciate it...that way our folks know that I'm pulling my weight within the organization).

Or if you would like to make a donation more directly, please call the GIRF office at 312-332-1350.

Thank you for considering supporting me and GIRF!

Get Your Urban On.

In 2005, Eileen and I ran the Chicago Marathon together, and in the process I was able to raise over $2000 for GIRF--dollars that in turn went directly to funding research into digestive disorders at U of C. Running the Chicago Marathon was an unforgettable and rewarding experience, but I wanted to challenge myself in other ways in 2007. As a result, I have been training for the 1st annual Chicago Urbanathlon, sponsored by Men’s Health magazine and taking place on October 20, 2007. This is essentially a half-marathon with a number of stops along the way to test your fitness. Obstacle courses, running the stairs at Soldier Field and other challenges will test my strength and agility in addition to my endurance as a runner. To be honest, I am a little clueless as to how this is all going to work...but I am excited for the challenge and another opportunity to prove that people living with chronic intestinal diseases don’t have to live a compromised life (they can be big and strong, too)!

Won't you join me? For info and Urbanathlon registration, click here.

What is GIRF?


GIRF is the Gastro-Intestinal Research Foundation, a group of individuals (both patients and friends) who support research on the causes and cures of digestive diseases. GIRF was founded in 1967 and raises money to provide funding for equipment, laboratories and the support of investigators and young physicians in the University of Chicago Gastroenterology Section. The GI section at U of C (where I’m also in medical school) is a group of full-time dedicated doctors who seek solutions to a variety of gastrointestinal illnesses that affect the esophagus, the stomach, the small and large intestines, the liver, the gallbladder, and the pancreas. U of C Hospitals is one of the premiere centers for the treatment of IBD in the United States; in the US News 2006 rankings of best hospitals, the GI unit as a whole was ranked 6th nationally. As a member of the GIRF Associates Board (composed of the young adults involved with GIRF), I help to raise money that specifically supports the research of first-year GI fellows. In addition to assisting gastroenterologists at U of C, we also seek to promote the education of the general public regarding issues of digestive health. Click here for more info.

Tuesday, July 3, 2007

Let the training begin!

Thanks for visiting the blog. I think I'm a good five years late to the phenomenon, but I wanted to get the word out about a great and noble cause (not that I'm biased or anything). Also, I wanted to document the experience of one guy with a chronic disease (Crohn's Disease, an inflammatory bowel disease) who is still living a normal life. Many people in the United States and around the world have debilitating autoimmune diseases such as inflammatory bowel disease (IBD), and the incidence is increasing. But that shouldn't keep us from leading fulfilling lives without limits! Especially for younger folks who might have recently been diagnosed with Ulcerative Colitis or Crohn's Disease, I hope that this site can inspire you to work hard to achieve your future goals, regardless of what extra obstacles we have to overcome.

But the main thing I'm trying to do is...raise money. I will be participating in the 2007 Men's Health Urbanathlon in Chicago on October 20, 2007. I am seeking sponsorship/donations to the Gastroinstestinal Research Foundation (GIRF) at the University of Chicago to fund research into the causes and cures of a variety of GI-related diseases. If you are inspired by what I am doing here, please consider donating to a cause very close to my heart--I want to take care of the doctors who take care of me. And in the process, take care of a whole lot of other people with diseases like Crohn's.

Check back and I'll have more information about what I'm doing, how I am preparing for the Urbanathlon, more information about GIRF and how you can donate, and maybe every now and then some personal anecdotes about life with Crohn's Disease.

Thanks for your support!